Additional Information

If you have or are being tested for Marfan syndrome research is being conducted in many centers to prevent this disease. If you are interested in participating in studies and research, or would just like more information on Marfan Syndrome you may want to contact the following agencies.

National Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050-2023
Phone: 800-8-MARFAN (862-7326) (free of charge)
Fax: 516-883-8040
E-mail: staff@marfan.org
www.marfan.org

American Heart Association
7272 Greenville Avenue
Dallas, TX 75231
Phone: 800-AHA-USA1 (242-8721) (free of charge)
E-mail: inquiries@heart.org
www.americanheart.org

National Human Genome Research Institute (NHGRI)
National Institutes of Health
9000 Rockville Pike
Bethesda, MD 20892
Phone: 800-411-1222 (free of charge) (for information about entering a clinical study)
E-mail: prpl@mail.cc.nih.gov

Also to join a Marfan Syndrome support group call your local health clinic.